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The Johns Hopkins Ovarian Cancer Center of Excellence acknowledges and thanks Aventis, Genzyme, GlaxoSmithKline, Oncotech, Ortho Biotech, and The Pam McDonald Fund for their support of this website through provision of unrestricted educational grants.
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The Johns Hopkins Ovarian Cancer Center of Excellence
Group: Treatment
Message Title: Re: not going well
Posted By: jperry
Date Posted: December 06, 2007
Message Body:
Hi Sharon, Sounds like I am going through some of the same issues as you and wanted to share. I had surgery with Dr. Bristow at Hopkins for Ovarian Cancer (stage IIIC) on Sept. 7, getting out of hospital 1 week later and started IV chemo with Taxol and Carboplatin on Sept. 27 one day after my mediport was put in my chest. The next day, I had diarrhea all day long until I thought I couldn't take it anymore and prayed for it to stop. I had a resegmented bowel during surgery and didn't know how much of the misery was related to the chemo or me getting used to my new digestive system. The port area became infected and had to be taken out a couple days later, so the 2nd round of chemo was through an IV in my arm. I got a new mediport on the left side of my chest on November 2, and then had to go to the ER at Hopkins early Sunday morning Nov. 4 for a bowel blockage which caused severe stomach pain and nausea. I was in the hospital in for several days with NG tube and monitoring what looked like another infection in my new port, but was able to keep the port and it is ok now. This being said, I think things have gone smoothly so far and I can see that you have to be vigilante with everything you do and stay in touch with doctors and chemo coordinator. I am very impressed with the care in the hospital and the team of doctors. Since I started on the 21 day cycle of 3 IV Chemos before getting a IP port in my stomach December 3rd, I felt like I have had one tough week with fatigue and bowel issues and 2 good weeks where I have worked and done "normal activities". I have started some Physical Therapy sessions at Specialty Rehabilitation in Newark, Delaware. They specialize in helping cancer patients, but most people who go there are done with chemo treatments. I think it is a real plus to try and maintain strength and conditioning during treatment when I feel well enough to go. I have used an exercise ball, weights, deep-breathing exercises, massage, and machines. I also get a 30 minute anodyne treatment on my feet for neuropathy or tingling in my toes. It is nice to communicate with other patients going through similar treatments and circumstance and see what they are doing with nutrition, etc. to help. Any advice would be welcome. Good luck with your upcoming treatments! Joyce from Pennsylvania Original Message: »» Hello: This is my first message. I don't see many new messages on this site? Anyway I had my first chemo, went sailing through the tx itself and then lord, what misery came upon me! First Diaherra (sp), then stomach pain, then constipation, then nausea then more diaherra. Today I managed to get out of bed to get to the hospital to find a wig or something to cover my hair which is soon to fall out. I met my girlfriend there and she was a good friend. Is there anyone else at this stage? Sharon from Wisconsin Original Message: »» Hello: This is my first message. I don't see many new messages on this site? Anyway I had my first chemo, went sailing through the tx itself and then lord, what misery came upon me! First Diaherra (sp), then stomach pain, then constipation, then nausea then more diaherra. Today I managed to get out of bed to get to the hospital to find a wig or something to cover my hair which is soon to fall out. I met my girlfriend there and she was a good friend. Is there anyone else at this stage? Sharon from Wisconsin


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